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obscurastrange's Reviews (166)
While this book does include a great deal of the methods of recovery for ME/CFS, I think it’s better to get this information from a different source such as the ME Association website.
My issues with this book: Condescending voice, directed towards Mild patients, some Ableism, and Religious beliefs throughout.
I found the voice of this book to be quite condescending throughout. It’s strange to me that she labels ME or ME/CFS as CFS/ME or even just Fatigue sometimes, considering she worked within treatment, and was diagnosed herself. The more common way of referring to it is as ME or putting ME before CFS, as CFS is widely considered an unsuitable name for the illness now.
While this book does cover a lot of methods for recovery, it does so for the mild patient. And while I’m sure that is useful for mild patients, it can be alienating for patients with worse severity and feel quite isolating.
There were some weird and even ableist thoughts throughout this book, talking about having this illness as a ‘season’ in your life, again I’m sure this can be useful and positive for mild patients but it is not helpful for more moderate or severe patients. She only mentions using mobility aids briefly and makes sure to say that it is TEMPORARY and for LONG DAYS, this is really weirdly ableist and has the potential to be damaging to people reading it who could greatly benefit from mobility aids but are left feeling as though it is a last resort. Mobility aids give freedom and independence, and shouldn’t be treated in this way. Another thing mentioned was that often POTS patients are TALL and THIN WOMEN. What on earth? POTS does effect more women than men, but it can effect people of all heights and weights. This is really outdated and just a strange thing to say.
My biggest gripe with this book is the inclusion of religion and Christian prayer throughout. I was open minded at first, I thought, at worse I could skip the pages with the prayers. But these beliefs permeate through the whole book. She even called Mindfulness a ‘SECULAR PRACTICE’. I am utterly bewildered. By that logic Sleep, Diet, Pacing, Adaptations, anything else that could be helpful to recovery is a SECULAR practice.
Honestly, there is no need to read this book, al the useful information can be found on websites such as the ME Association.
My issues with this book: Condescending voice, directed towards Mild patients, some Ableism, and Religious beliefs throughout.
I found the voice of this book to be quite condescending throughout. It’s strange to me that she labels ME or ME/CFS as CFS/ME or even just Fatigue sometimes, considering she worked within treatment, and was diagnosed herself. The more common way of referring to it is as ME or putting ME before CFS, as CFS is widely considered an unsuitable name for the illness now.
While this book does cover a lot of methods for recovery, it does so for the mild patient. And while I’m sure that is useful for mild patients, it can be alienating for patients with worse severity and feel quite isolating.
There were some weird and even ableist thoughts throughout this book, talking about having this illness as a ‘season’ in your life, again I’m sure this can be useful and positive for mild patients but it is not helpful for more moderate or severe patients. She only mentions using mobility aids briefly and makes sure to say that it is TEMPORARY and for LONG DAYS, this is really weirdly ableist and has the potential to be damaging to people reading it who could greatly benefit from mobility aids but are left feeling as though it is a last resort. Mobility aids give freedom and independence, and shouldn’t be treated in this way. Another thing mentioned was that often POTS patients are TALL and THIN WOMEN. What on earth? POTS does effect more women than men, but it can effect people of all heights and weights. This is really outdated and just a strange thing to say.
My biggest gripe with this book is the inclusion of religion and Christian prayer throughout. I was open minded at first, I thought, at worse I could skip the pages with the prayers. But these beliefs permeate through the whole book. She even called Mindfulness a ‘SECULAR PRACTICE’. I am utterly bewildered. By that logic Sleep, Diet, Pacing, Adaptations, anything else that could be helpful to recovery is a SECULAR practice.
Honestly, there is no need to read this book, al the useful information can be found on websites such as the ME Association.
Content Warnings
Moderate: Ableism
dark
medium-paced
dark
fast-paced
dark